Share Your Mayo Clinic Story: March 2009

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This is an open forum where you can tell your Mayo Clinic story.

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4 Responses to “Share Your Mayo Clinic Story: March 2009”

  1. Dean S Says:

    October 2006 my wife went to Mayo Clinic to have her heart valves replaced. After her successful surgery it was determined that her phrenic valve was cut. Since then she has been in 8 hospitols and on a ventilator at home.

    I am the 24/7 caregiver.

  2. Liz Uraga Says:

    Another benefit of the patient resume: for elderly patients or patients whose condition impairs memory, it creates a record for the patient to see what happened during the course of their treatment. Once the patient is again fully cognizant, he or she can review the resume and notes and share his/her thoughts with doctors and caregivers on how to handle future episodes.

  3. Brenda McGuire Says:

    The Patient Resume: It speaks when you can’t.

    Four generations of our family have been patients at Mayo Clinic, and I am the caregiver for two of them. Last month in Lesson #4 of the post “Lessons I Have Learned from Mayo Clinic,” I discussed the patient resume I created. We used it just last week at St. Mary’s ER in Rochester and it still works. Here’s why.

    If you dread the list of questions you must answer each time you go to a medical appointment, the patient resume is for you. Not only does the one page medical history provide the answers to insurance, medication, and allergy questions, it gives the doctor a summary of past ailments, hospitalizations and their results. Bringing a list of questions and current symptoms in your notes allows you to focus on your most pressing concerns.

    The first time we used the patient resume was during a Mayo Clinic visit. There were multiple symptoms and medical contacts to report. I wasn’t sure how to begin so I started summarizing my notes before we left home. The patient resume was the result. The doctor gushed over it and got to the gist of the problem quicker than expected, given the fat medical file we brought with us. The time I’d spent to insure the accuracy of the resume was worth it, and updates were easy to make once the original work had been done.

    Since then we’ve kept the patient resume in our wallets and have used it in emergency rooms, at appointments, and with paramedics. Although medical folks are startled when they first see it, they quickly make copies and refer to it in consultations.

    Sometimes the stress of chronic illness can leave my mind blank, but the patient resume speaks when I can’t. Maybe it can do the same for you.

    Next month I’ll send in a comment about the Caregiver’s Bag.

  4. Heather Says:

    My mother has been going to Mayo Clinic in Rochester, MN since 1985 and had she been here the year before I fully believe her life would have been very different. She had a bleeding ulcer and a local surgeon at home removed part of her stomach and frankly bothced it and they finally sent her here a year later and Mayo has spent the past 29 years fixing (or trying to) the mess. I know that Mayo (and St. Mary’s Hospital) can and do make mistakes too they’re not infallible but I would trust this place and the employees from the top dog to the newest volunteer any given day over any other medical facility in the world. I have no doubt that my mother would have been dead by 1986 had it not been for these people so Thank You from the bottom of my heart you have given me at least 23 more years with my mother and she is the heart of our family. Her spirit and willpower have been an inspiration to everyone who knows her and that is all due to this place so once again and everyday 24/7 thank you, thank you, thank you. I won’t go into great detail at this time because as you can imagine after 23+ years her history and body are a bit unique and that is a quote from her current surgeon. Saying that her primary doc is a surgeon fills you in a little as to her situation. And one of the best things is that after 20+ years of somekind of feeding tube and artificial nutrition she was finally able to start eating again a year ago. I can’t imagine going 20 years without food but she did it.

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