Hayley Lairmore’s Mayo Clinic Journey

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I first heard about Hayley Lairmore through a comment card her mom, Christine, sent to Mayo Clinic after their visit to Rochester last December. It was an amazing story of how Hayley had been throwing up an average of 10 times a day for several months, and how Christine and her husband Robert had been unable to get answers from several hospitals in southern California. But early one September morning (about 1 a.m.) Christine stumbled upon a blog post from a Mayo Clinic patient, who described symptoms just like Hayley’s and who mentioned her doctor, Phil Fischer, M.D. That led Christine to this video of Dr. Fischer, and this podcast, and eventually answers for Hayley.

Christine recounts the story in this post on Sharing Mayo Clinic, and you can read more about it in this story published today on ABCNEWS.com.

I was in California in May, and took the opportunity on Mother’s Day to meet the Lairmores personally and to interview Christine and Hayley about the experience. The video below is the first of a series in which Mrs. Lairmore describes Hayley’s illness and how social media tools like blogs and YouTube helped her find answers at Mayo Clinic:

Check back tomorrow for Part 2 of the series.

Lee Aase is manager of syndication and social media at Mayo Clinic.

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2 Responses to “Hayley Lairmore’s Mayo Clinic Journey”

  1. Courtney Says:

    My mom “diagnosed” me with POTS after reading about it on the internet, too! I’d had three seizures over the course of six months, and anti-convulsants didn’t work. Tests confirmed I didn’t have abnormal brain activity, so doctors couldn’t figure out what was going on. I often felt dizzy and have had persistent stomach problems since childhood, and it took lots of web surfing to finally figure out what was wrong. We urged doctors to perform a tilt-table test, and sure enough it was POTS. You can read my full store on my blog… click my name to go to it. This is such an amazing story, and it’s great that Hayley is doing better! 🙂

  2. Meldine Lee Says:

    It was good to read the article and see the video. I have spent the last year with my 17 year old daughter going through the unknown illness maze. She also felt nauseated but never got sick. Her biggest issue was passing out without any warning. She would pass out 3-7 times a week. Needless to say this wrecked havoc with her school life and life in general. We started out going through a neurologist who was sure she was having seizures. I kept pushing to find an answer. Two GPs, two neurologist and one cardiologist later we finally found a cardiologist, Dr. Hannon, out of Pitt Hospital in Greenville, NC who heard the symptons and gave the diagnosis of Neurocardiogenic Syncopy. The diagnosis was confirmed with a tilt table test. He explained the condition to us and is following the same meds that are being used at the Mayo Clinic. Every system in her body that is controlled by the autonomic nervous system has been affected. Her inability to sleep, digestion, circulation, tiredness, brain fog and the passing out have been extremely hard on her. She is getting better but it has been a long hard year for her. Both POTS and Neurocardiogenic syncope are disorders of the autonomic nervous system. At times the two seem more similar than dissimilar. It is so illusive and the symptoms keep changing. Hopefully Keegan will continue to get better.

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